Autonomy and independence are considered important in our society, and is often a big part of one’s identity. In my case, being diagnosed with Multiple Sclerosis, it is no longer self-evident that the body carries out actions, sometimes not even the simplest. These experiences lead to alienation, fear and an instrumental vision towards the body. With the loss of the certainty of a functioning body, the identity is also compromised. Who I am, and how the disease influences my identity is something I explore in this project.
This project is supported by Mondriaan Fund and Amsterdamse Fonds voor de Kunsten